Spinal muscular atrophies

Results: 52



#Item
31A Family Guide to the Consensus Statement for Standard of Care in Spinal Muscular Atrophy This Family Guide to the Consensus Statement for Standard of Care in Spinal Muscular Atrophy was prepared by SMA Advocates for fam

A Family Guide to the Consensus Statement for Standard of Care in Spinal Muscular Atrophy This Family Guide to the Consensus Statement for Standard of Care in Spinal Muscular Atrophy was prepared by SMA Advocates for fam

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Source URL: mda.org

Language: English - Date: 2011-10-05 13:52:25
32Mr. Spencer O. Perlman Legislative Affairs Coordinator Families of Spinal Muscular Atrophy 1025 Connecticut Ave., NW, Suite #216 Washington, DC[removed]Dear Mr. Perlman:

Mr. Spencer O. Perlman Legislative Affairs Coordinator Families of Spinal Muscular Atrophy 1025 Connecticut Ave., NW, Suite #216 Washington, DC[removed]Dear Mr. Perlman:

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Source URL: www.hrsa.gov

Language: English - Date: 2012-01-07 00:53:39
33Standard of Care in Spinal Muscular Atrophy: A Consensus Statement by the International SMA Standard of Care Committee

Standard of Care in Spinal Muscular Atrophy: A Consensus Statement by the International SMA Standard of Care Committee

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Source URL: mda.org

Language: English - Date: 2011-10-05 13:52:22
34Microsoft Word - Kennedy[removed]doc

Microsoft Word - Kennedy[removed]doc

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Source URL: mda.org

Language: English - Date: 2013-04-10 15:02:01
35Microsoft Word - cantor[removed]doc

Microsoft Word - cantor[removed]doc

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Source URL: mda.org

Language: English - Date: 2013-04-10 15:01:46
36Microsoft Word - Stabenow[removed]doc

Microsoft Word - Stabenow[removed]doc

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Source URL: mda.org

Language: English - Date: 2013-04-10 15:02:09
37Microsoft Word - Isakson[removed]doc

Microsoft Word - Isakson[removed]doc

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Source URL: mda.org

Language: English - Date: 2013-04-10 15:02:24
38School Accommodation Recommendations Diagnosis: Spinal Muscular Atrophy (SMA) SMA is a genetic disorder that involves the loss of muscle-controlling nerve cells, called motor neurons, in the spinal cord. The primary effe

School Accommodation Recommendations Diagnosis: Spinal Muscular Atrophy (SMA) SMA is a genetic disorder that involves the loss of muscle-controlling nerve cells, called motor neurons, in the spinal cord. The primary effe

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Source URL: mda.org

Language: English - Date: 2013-10-16 19:41:36
39Facts About  Spinal Muscular Atrophy  Updated December 2009

Facts About Spinal Muscular Atrophy Updated December 2009

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Source URL: mda.org

Language: English - Date: 2011-09-19 19:04:12
40Mapping the differences in care for 5000 Spinal Muscular Atrophy patients, a survey of 23 national registries in North America, Australasia and Europe. Bladen, C.L, The TREAT-NMD SMA Group and Lochmuller, H. MRC Centre f

Mapping the differences in care for 5000 Spinal Muscular Atrophy patients, a survey of 23 national registries in North America, Australasia and Europe. Bladen, C.L, The TREAT-NMD SMA Group and Lochmuller, H. MRC Centre f

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Source URL: www.rare-diseases.eu

Language: English - Date: 2014-05-02 11:53:54